Agora participated in the CEF (Council of European Rare Disease Federations ) EURORDIS Meeting in Paris during November 2022. During the meeting, we had the chance to exchange experiences and
information across federations working for different diseases or group of diseases.
The Council meetig enables European and international RD Federations:
To share information and experience relevant to activities and issues they have in common across their specific rare diseases at the European level,
To discuss and implement common activities within EURORDIS,
To enhance or build their capacities as European Federations gathering patient groups from different countries for their specific disease or group of diseases,
To foster their voice at the European level for their respective diseases, in order to –directly or indirectly- fight against the impact on the lives of people living with the rare diseases these European federations are specifically addressing.